The Child Mind BlogBrainstorm
Back to School with Live Facebook Talks
Sept. 20, 2012 Child Mind Institute
Whether kids are in kindergarten or away at college, it's important that parents have all the knowledge and resources they can get to help guide their children as they grow and develop.
To help prepare parents, we hosted a live event today on Facebook called "A Parent's Guide to Bullying" with Dr. Jamie Howard. The talk included tips on what might put your child at risk for being bullied or bullying others, warning signs that your child might be getting bullied, and what parents can do to stop bullying and cyberbullying. The talk included a Q&A segment at the end, giving parents and teachers the opportunity to write in about their particular obstacles.
If you missed the talk, watch it here:
On Monday, September 17th we also hosted a live Facebook talk called "Is it Depression or Teen Angst?" with Dr. Natalie Weder. As parents of high school students know, it can be hard to tell what is normal teenage moodiness and what might be something more serious. In this talk Dr. Weder discusses the warning signs of adolescent depression, risks associated with depression, how parents and schools might be able to help, and what treatment options are available.
Watch the talk followed by a Q&A session :
Stay tuned for more live Facebook talks!View Comments | Add Comment
'Parenthood' Goes to the Dogs
Sept. 20, 2012 Beth Arky
When I settle in for my weekly fix of Parenthood, I'm always prepared for an emotional roller-coaster ride. But this episode was particularly wild. As an over-the-top dog lover, I knew I was in for it as soon as I saw Kristina cooing over puppy websites on her laptop. When husband Adam registered his skeptical but admittedly legitimate concerns—"I love dogs but I also know what a royal pain in the ass having a puppy can be"—she responded readily that "research shows that this dog would be good for Max," their Aspie son. "They're compatible with kids on the autism spectrum."
I know I feel happy around furry friends who are always excited to see me, provide unconditional love, and—this is key, now that I'm a mom—don't talk back. And Kristina's right, there are studies saying pets, and dogs in particular, help those on the autism spectrum in a wide range of ways, from improving socialization skills to providing comfort and decreasing anxiety. Learning to bond with a cat or dog may, for example, help an autistic child interact with people. A child or teen like Max, accompanied by a dog, is bound to draw other kids, and potential friends, while the pet provides a natural topic of conversation.
Jean Winegardner, who blogs at Stimeyland, doesn't need to see statistics to be convinced. "I think animals can be a really great, low-pressure way for people on the spectrum to connect with another creature," says the mother of three boys, including autistic son Jack, 9. "I've watched my son bond strongly with his pets, especially our late cat, Izzy." Winegardner, who wrote recently about coming out about her own autism, says, "I know that I have always felt a kinship with animals as well. They can be both family and friend without all of the complicated social interaction."
There were some twists and turns along the way, but by the end of the episode Max and his formerly leery father had adopted an adorable black and white puppy. I'm sure I wasn't the only viewer thrilled to see the often remote-looking boy so overjoyed by his new pet. But based on the jolting finale—no spoiler here, other than to say I could have passed on this particular cliff-hanger—Max isn't the only Braverman who will be seeking comfort from an always-loving friend.
Stay tuned for an upcoming piece by Beth Arky exploring how companion, service, and therapy animals can help children with psychiatric and learning disorders.View Comments | Add Comment
Moms Need (and Deserve) Help Too
Sept. 17, 2012 Caroline Miller
Several mothers of special needs children have written painful posts recently about "losing it" with their kids—one wrote about hitting her six-year-old and another about calling the police when she was being attacked by her son, who is 8. The woman who dialed 911, Christina Shaver, is a Chicago mom who wrote that her son Evan had been upset by the disruption in his school routine caused by the teachers' strike.
Here's something I haven't done in a long time: I called the cops on Evan tonight. I have a bruised hand, sore forearm, and who knows what condition the back of my knee will be in once it stops throbbing. He just snapped tonight. It is not usual for him to snap. He's nearly as big as I am, and I can no longer fend for myself against him.
The woman who hit her son, Alexis Magnusson, was describing an incident two years ago that upset her deeply. She writes that she had been up with a sick baby for days, and her son Casey had been screaming for three hours. "In that time, he had bitten, kicked, punched, and thrown chairs and shoes at me and both of his brothers—and was then threatening to hurt his baby sister." Stunned by what she had done, she described buckling him into his car seat "because I did not know what else to do. He's safe. Safe from himself, and so much worse, safe from me."
Magnusson writes about the incident not to justify it—quite the contrary—but to make the point that mothers (and fathers) who are overwhelmed by the challenge of coping with violent and injurious behaviors need to be able to talk about it and get help, rather than hiding their anger and frustration and feeling that they have to be perfect, and perfectly understanding of their kids.
Even as I write this I feel the pressure to choose my words carefully to make it clear that empathizing with the stress and suffering of parents under duress does not mean minimizing the humanity of their children. The pressure they're under is much greater than mine: Moms (it's still mostly moms) who talk about how bad things can be in their homes risk being criticized by autism self-advocates for elevating their needs and rights over those of their kids.
Happily Landon Bryce, a self-advocate I respect, but who can be very, very tough on parents, responds positively to Magnusson's honesty: "I hope that, rather than judging her, we will remember our own imperfections and get the help we need if we are in danger of hurting ourselves or others."View Comments | Add Comment
Back to School: A Parent's Guide to Bullying Tweetchat
Sept. 14, 2012 Child Mind Institute
Yesterday, Dr. Jamie Howard was joined by Caroline Knorr, Parenting Editor of Common Sense Media and Dr. Sheldon Horowitz of the National Center for Learning Disabilities for a tweetchat on how to recognize and prevent bullying and cyberbullying. If you missed it, read the conversation below.
Also join us for: A live Facebook talk on Monday, September 17th with Dr. Natalie Weder presenting "Is it Depression or Teen Angst?" and Thursday, September 20th for a follow-up Facebook talk on "Parent's Guide to Bullying" with Dr. Jamie Howard.View Comments | Add Comment
'Parenthood' Back With Big Changes for Max
Sept. 12, 2012 Beth Arky
Parenthood fans who had been anxiously awaiting the return of the Bravermans weren't disappointed by this week's Season 4 premiere. As Ken Tucker wrote in his review for Entertainment Weekly, the NBC show "demonstrated once again how engrossing this series can be, in no small part by dramatizing how irritating family members can be."
The episode revolved around Haddie's departure for her first year at Cornell and her complicated, increasingly stormy relationship with younger brother Max, diagnosed with Asperger's. A family going-away lunch out turned disastrous when the sandwich Max ordered was no longer on the menu; change-averse Max, already angry over his lost lizard, yelled at the waitress and tried to get up from his seat inside the booth. (The restaurant's sensory overload couldn't have helped, either.) At one point, an irate Kristina—who also had to contend with Haddie's arguing and baby Nora's screaming—ordered the guy in the next booth to "please turn around; this is not your family."
The scene hit home for many special-need parents who have had to endure onlookers' stares. "Oh yes, been there," says Judy, whose 12-year-old son has a dual diagnosis of Asperger's and ADHD. "Last week, he was doing his 'I have to sit in my favorite seat on the bus' thing, and after deciding to pick my battles, I let him go to the back of the bus. A woman near me was saying to her friend that if that were her son, she'd be giving him a whooping. I had to restrain myself from saying what I was really thinking." Lisa Quinones-Fontanez, who blogs at AutismWonderland, says she loved Kristina's reaction—"she's getting feisty"—because "it shows how she's evolved. In the beginning, she was all weepy because of Max's diagnosis, which is why so many [autism] parents dislike her. But it's also appropriate because Max got his diagnosis late; he was not a kid who went through Early Intervention. Her telling the stranger to mind his own business showed that she's learning to accept Max and his diagnosis."
Later, Haddie visited Max in his room for a private goodbye. She told him she'd miss him and his complete honesty before handing him a very thoughtful gift—a weighted blanket, which some with sensory issues find calming. While Max clearly liked the blanket, he never said thank you. So when did she get her "thank you"? When she told Max she loved him. And Haddie does love Max, but her brother's less-than-typical behavior clearly wears on her. Patty Porch-Hooper, who blogs at pancakesgoneawry, says the Haddie-Max relationship mirrors that of her neurotypical daughter, Charlotte, almost 7, and her autistic son, Danny, 9. " Some days after school," she says, "Charlotte just wants to play with Danny but he needs a lot of space after a stressful day, so he blows her off, leaving Charlotte crying, heartbroken. I have had to explain to her that he needs space. She isn't old enough to really recognize their differences, but the way Max responded to Haddie is so similar to how Danny has responded to me and other family members. It is so hard not to take it personally, especially when you are trying so hard to connect. I worry about the future when my daughter expects a little more give and take from your relationship."
But the final straw came when Haddie discovered Max tearing through her luggage in search of his missing lizard. She screamed at her brother to stop, to no effect. She stormed out with these parting words, dripping with sarcasm, for Kristina and Adam: "And by the way, I had my bonding time with Max, and it went really great, and we're closer than ever, and he's totally normal!"
With Haddie off the show, at least for the time being, a new storyline involving Joel and Julia's adoption of Victor out of foster care is bound to present some difficult issues. As creator Jason Katims told TV Guide, the boy "shakes it up in a big way. Especially when you adopt a child who is a little older, it's one thing to say you're going to become a family and it's another thing to have that actually happen." Julia spoke to those challenges when she revealed to Joel something most parents, biological or adoptive, are loathe to admit: "I feel like I'm waiting to fall in love with our son." Tootsiepop6 tweeted to executive producer Ron Howard that the line was "so real. so raw... HONEST."
Some on facebook and twitter say they have a love/hate relationship with Parenthood, yet they often speak of the Bravermans as if they're real people. We're likewise engaged, and look forward to spending more time with them.View Comments | Add Comment
Nightmare in a Seclusion Room
Sept. 11, 2012 Rachel Ehmke
This weekend the New York Times ran an alarming op-ed written by Bill Lichtenstein, a father who found out that his kindergartener was being locked inside a closet at her Massachusetts public school for up to an hour as a disciplinary measure. This might seem to be illegal, but many schools actually consider so-called "seclusion rooms" a valid strategy for punishing and isolating kids who are displaying problematic behaviors. Seclusion rooms are used disproportionately with kids who have learning, behavioral, physical, or developmental needs. This includes Lichtenstein's daughter Rose, who has speech and language delays.
Lichtenstein began noticing tell-tale signs of trauma in Rose at home, but he couldn't get an explanation for the change in her behavior until he saw first hand exactly how her teachers were disciplining her. What he learned was horrifying:
At school, her mother and I found Rose standing alone on the cement floor of a basement mop closet, illuminated by a single light bulb. There was nothing in the closet for a child - no chair, no books, no crayons, nothing but our daughter standing naked in a pool of urine, looking frightened as she tried to cover herself with her hands. On the floor lay her favorite purple-striped Hanna Andersson outfit and panties.
Later he explains that she was naked because she needed to use the bathroom while she was locked inside the closet and didn't want to soil her favorite outfit. When people at the school discovered she was naked they called her parents but did not offer to help her. Now, six years later, Rose tells her father that the people involved "weren't bad people; they just didn't know about working with children."
Seclusion rooms were first used in special needs schools and then followed special needs students as they were mainstreamed into public classrooms. According to an expert interviewed by Lichtenstein, this often happened without proper staff training, introducing new students that schools didn't know how to care for and new techniques that schools didn't know how to use.
Rose's story is especially painful for parents in New York City, where massive special education reform is happening right now. Starting last week, the vast majority of special needs students in the city were required to leave their specialized programs or schools and enroll in mainstream classes at their neighborhood school. The Department of Education hopes this placement will provide a more individualized education and improve graduation rates for kids with special needs, but many parents are worried that local schools are unprepared for the influx of new students requiring new supports. A recent study found that the Department of Education did a good job getting ready for the transition. We hope so.View Comments | Add Comment
NBA Player Royce White Talks Anxiety Disorders on Draft Day
Sept. 6, 2012 Rachel Ehmke
If you have an anxiety disorder, or if you know someone who has an anxiety disorder, or if you are a basketball fan, or if you are a human with a beating heart stop what you're doing and watch this awesome nine-minute documentary about NBA player Royce White from the people at Grantland.
White, who was diagnosed with generalized anxiety disorder when he was 18, has been very open about his anxiety, panic attacks, and fear of flying. (He caught the media's attention last year when he and his grandfather drove ten hours to the NCAA tournament first round games.) While his frankness is inspiring to anxious kids (and adults) everywhere, NBA teams were less excited about drafting a potentially high-risk player who might not be able to keep up with the intense pressure and travel associated with a rigorous professional schedule.
The filmmakers followed White around on draft day this past June, watching him meet with his team doctor and endure the nerve-racking wait to see when—and if—he'll be called. By all accounts White is a brilliant player and many believe he deserved to be drafted in the top ten, but his future feels very uncertain in the documentary as team after team rejects him.
We can't say enough good things about White and his commitment to being a role model who isn't afraid to talk about his mental health on a national stage, even when it has very real consequences for him. It's clear that he is a courageous guy. In the film he says, "My doctor told me when I was 18—she looked at me right in the face and said, 'You know what, basketball might not be right for you. Because you know this industry is built to defeat somebody like you.' But I want people to see that you can deal with your disorder. You can chase your dream."
As fans know, he does get drafted—at 16—to the Houston Rockets and coach Kevin McHale. Back in college he was offered a position to play for Kentucky, but he backed out after having a panic attack at the thought of flying there. He says he's getting better about flying, and it's inspiring to see him board a plane out of Des Moines to join his new team in Texas at the end of the film. "I'm very scared," he admits. "It's just something I'm going to have to go try and do and see how it works out."
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Half of Teenagers With Autism Bullied
Sept. 4, 2012 Caroline Miller
It wasn't exactly a surprise, the news that nearly half of teenagers with autism report having been bullied. A new analysis of data from a sample of 920 parents of kids on the autism spectrum found that 46 percent had been bullied, compared to just 10.6 percent of the general population. We knew that kids who are different and socially awkward tend to be targets. But it's interesting to note that the kids who seem to be at highest risk of being bullied aren't those who are most impaired.
On the contrary, as the New York Times reporter put it: "The researchers found that the risk of being bullied was greatest for high-functioning children who end up not in special education programs, but in mainstream classes, where their quirks and unusual mannerisms stand out and they are more exposed to bullies."
Middle and high school kids who are mainstreamed are more likely to be unprotected, and interacting with children who see an opportunity to tease or torment them. Obviously we need to do a better job teaching those kids to comprehend the notion of neurodiversity—the term of choice for people on the spectrum and in the larger autism community. But it's a term I suspect most 15-year-olds have never heard, let alone thought about.
One ray of hope, though: I note that the data analyzed was from 2001, according to the Times. Perhaps the "neurotypical" kids in mainstream classrooms have made a little progress since then.View Comments | Add Comment
Shocking: The Judge Rotenberg Center
Sept. 4, 2012 Harry Kimball
There is pretty terrifying article in New York magazine about the Judge Rotenberg Center, a residential treatment facility and school in Massachusetts for young people with developmental disorders, where they employ electric shocks as "aversives," punishment for undesired behaviors. The JRC has been in the sights of the autism community for quite a while, although some parents of kids who have been treated there swear that the program is life-changing (in a good way).
I think it is quite possible that the staff of the JRC are honestly trying to help their young charges. But the article, by Jennifer Gonnerman, illustrates capriciousness in treatment for behavioral issues that would be bizarre, unhelpful, and unacceptable even if it didn't involve electric shocks. The main character in this story is Andre McCollins, an intellectually disabled young man from New York who had been fitted with the shock device at the school. One day, in 2002, he was shocked 31 times.
"Hour after hour went by and nobody knelt down next to Andre to try to calm him," Gonnerman writes. "Attention was considered a reward—and a student who's exhibiting 'targeted behaviors' is not supposed to receive any." Well, that's all well and good—but you do not need to couple this "active ignoring" with active punishment. Particularly when the theory behind it is so patently mercurial. Because after all of this, JRC founder Dr. Matthew Israel comes in to the room. "He stood at a distance, arms folded across his chest, and assessed the scene," Gonnerman continues. "He concluded, as he later testified in court, 'The program that was designed really needed to be changed.' He ordered his employees to stop shocking Andre."
There is no method to this madness. Gonnerman relates another story that further serves to illustrate how wrong-headed this enterprise is. In 2007 "a former student from New York had prank-called a Rotenberg residence at 2 a.m., pretending he was an employee in the monitoring department. He claimed to have seen three boys misbehaving earlier in the evening, and he ordered the workers to pull them out of bed and shock them. The employees complied. In the rec room, they tied two teenagers onto a restraint board and began shocking them."
This story doesn't end any more satisfactorily than McCollins'. "Eventually the workers figured out the call was a hoax—but not before they shocked one boy 29 times and the other 77 times."
There is a healthy debate about the best evidence-based treatments for developmental disorders. But it seems like the evidence lines up squarely against the apparently thoughtless application of force at the Judge Rotenberg Center.View Comments | Add Comment
Open Science: 500+ Autism Brain Scans Shared
Aug. 30, 2012 Harry Kimball
At the Child Mind Institute, we're very happy to have been a part of today's public release of more than 500 brain scans of people with autism as part of the Autism Brain Imaging Data Exchange (ABIDE) and the International Neuroimaging Data-sharing Initiative (INDI) Summer of Sharing. The whole dataset, with imaging from 539 individuals with autism spectrum disorders and 573 typical controls, is now available for anyone around the world to analyze—with the expectation that open sharing and collaboration will lead to new discoveries about the neural nature of autism, much in the same way that the ADHD 200 Consortium has encouraged novel approaches to identifying ADHD. In short, ABIDE is a sterling example of the open science that the field is moving towards, and that will eventually lead to a better understanding of the brain.
ABIDE is also a "big deal" for the autism research community, as Child Mind Institute Center for the Developing Brain director Michael Milham, MD, PhD puts it. Because of the many different ways autism affects different people—in terms of symptoms and severity—large sets of data are required to draw conclusions about the disorder. It has been difficult to gather these big samples, but the autism community has been at the forefront of advocating for sharing and open science, and the ABIDE release is a culmination of that push. A preliminary analysis of the data has already produced some novel ideas about how autism manifests in the brain at the "connectome" level—which regions talk to which other regions—and we hope that this is just the beginning.
16 institutions around the world joined together in this experiment in transparency and collaboration. The next time we report on an event like this, hopefully it will be even more.
You can check out the ABIDE page at the International Neuroimaging Data-sharing Initiative site here.View Comments | Add Comment